Jennifer

Jennifer shares the impact of ME/CFS on her life and family.

Latest

Research Digest 30/3/23

Welcome to the Research Digest’s 93rd edition. This month's edition summarises research that investigates factors that influence the prognosis of ME/CFS and demonstrates that high muscle sodium content, maybe a contributing factor to the pathophysiology of ME/CFS. A review is also highlighted that conveys what is presently known about Long COVID and finally, a local study sheds light on brain structure changes that are common to Long COVID and ME/CFS.
Run Melbourne 2023

We're participating in Run Melbourne 2023. Join now to help reach our goal by running, walking or performing your own activity with us!
GP Education at GPCE in 2023

We know how difficult it is to find a GP with knowledge of ME/CFS. One of the main aims for our GP education program is to grow the GP workforce confident to take on people with complex presentations.
Emerge Australia welcomes Tracey Spicer as an Ambassador

We are thrilled to announce that Tracey Spicer, AM BBus(Comm) GAICD, has joined Emerge Australia in an ongoing ambassador role.https://www.emerge.org.au/GetImage.aspx?IDMF=1bd7f269-50e9-45e2-80dd-98297ba7ec05&w=427&h=640&src=mc

Australia's Post-viral Disease Tsunami Threat

Emerge Australia, the national patient organisation providing services and evidence-based education about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) today issued an alert on a potential major hit to the Federal Budget and health services facing both major parties.
Australia's Post-viral Disease Tsunami Threat

Emerge Australia, the national patient organisation providing services and evidence-based education about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) today issued an alert on a potential major hit to the Federal Budget and health services facing both major parties.
The economic impact of Australia’s post-viral disease tsunami

Our policymakers must prepare now for the coming economic, health and social impacts of ME/CFS, Long COVID and other post-viral diseases. 250,000 Australians already live with ME/CFS and Deakin University predicts up to 325,000 more may develop Long COVID in the coming months. The human cost of post-viral diseases is obviously paramount, but the economic cost is also potentially devastating.
Learn from the past and invest for the future

For years, our health system has systemically neglected and failed to meet the needs of those with ME/CFS. If the number of Australians with post-viral disease more than doubles, health services could be overwhelmed and our economy smashed - ME/CFS alone costs an estimated $14.8bn a year in healthcare and lost productivity.
GP education program

There is currently no known cure for post-viral diseases such as ME/CFS and Long COVID. Early and accurate diagnosis is critical. General awareness of how to diagnose ME/CFS is limited in Australia. Emerge Australia has developed a comprehensive GP Education program but significant, long-term investment is required for implementation.
Australian Clinical Guidelines

Emerge Australia strongly advocates for the Australian ME/CFS Clinical Guidelines to be updated to remove GET and CBT as recommended treatment options in the recently released report, State of the Nation: Because people with ME/CFS matter.
Collaborative Research

Use ME/CFS knowledge to inform Long COVID and post-viral disease research. The burden of disease for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is significant because the condition is so disabling.
Access and equity for the NDIS and the DSP

The NDIS aims to give people with disabilities choice and control over the services and support they receive but many people living with ME/CFS face significant challenges accessing the scheme. In our recently released report State of the Nation: Because people with ME/CFS matter, Emerge Australia recommends the NDIA and Centrelink implement three key actions to improve assessment accuracy.
Jop

Jop shares his story of life with ME/CFS.